Ethics Education Modules
The Research Ethics Educational Modules are interactive learning resources designed to support the ethical conduct and review of child health research.
Developed through the CHEER project and now hosted by the Maternal, Infant, Child and Youth Research Network (MICYRN), the modules provide practical guidance for researchers, Research Ethics Board members, administrators, and patient and family partners.
Through real-world scenarios and expert insights, the modules address key ethical considerations in pediatric research and support consistent, high-quality research ethics practices across Canada.
Module 1: Participant Recruitment
In this module, you will spend some time considering how (participant) recruitment in child health research differs from recruitment in adult research.
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These competency-based online modules were created collaboratively by the Office for Professional Development and Educational Scholarship (Queen’s University), the CHEER Patient and Family Advisory Committee, and the CHEER Educational working group. With special thanks to everyone who contributed to the content of the modules for their hard work and dedication to the CHEER project. Without their commitment and invaluable expertise, the creation of these modules would not have been possible.
Subject Matter Experts:
Charmaine Kabatoff, Dory Sample, Hannah Pazderka, Kent Cadogan Loftsgard, Lise Bourrier, and Pat Longmuir
PFAC Reviewers:
Kent Cadogan Loftsgard, Karen Haas, Nancy Paoli, Laura Zitron, David Bell, Daria Ilkina, Eva Sokol, Tania Selman, Lorne Gould, Donna Ludwinski, and Gerard McDonald
CHEER Education Working Group:
Sam Drover, Miranda Miller, Will Horton, Lynsee Stephens , Eleftherios Soleas , Jeanne Mulder , Michelle Krezonoski, Shelby Gilmore, Joeline Lim, Jessica de Haan, Adelina Valiquette, Sonali Sheth, Brian Hallam, Dakota-Marie Oliver, and Cheryl Hallam
Principal Investigators:
Susan Marlin, Richard Carpentier, and Thierry Lacaze
Module 2: Patient and Public Engagement
In this module, you will learn about patient and public engagement in child health research.
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These competency-based online modules were created collaboratively by the Office for Professional Development and Educational Scholarship (Queen’s University), the CHEER Patient and Family Advisory Committee, and the CHEER Educational working group. With special thanks to everyone who contributed to the content of the modules for their hard work and dedication to the CHEER project. Without their commitment and invaluable expertise, the creation of these modules would not have been possible.
Subject Matter Experts:
Angelica Blais, Antonia Palmer, Carrie Costello, Kathy Brodeur-Robb, Sarah Elliott, and Suzanne Vercauteren
PFAC Reviewers:
Antonia Palmer, Kent Cadogan Loftsgard, Karen Haas, Nancy Paoli, Laura Zitron, David Bell, Daria Ilkina, Eva Sokol, Tania Selman, Lorne Gould, Donna Ludwinski, and Gerard McDonald
CHEER Education Working Group:
Sam Drover, Miranda Miller, Andrew Scott Forbes, Will Horton , Lynsee Stephens , Eleftherios Soleas , Jeanne Mulder , Michelle Krezonoski, Shelby Gilmore, Joeline Lim, Jessica de Haan, Adelina Valiquette, Sonali Sheth, Brian Hallam, Cheryl Hallam, Calvin Wong, Dakota-Marie Oliver and Stephen Sparks
Principal Investigators:
Susan Marlin, Richard Carpentier, and Thierry Lacaze
Module 3: Participant Consent and Assent
In this module, you will learn about participant assent and consent.
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These competency-based online modules were created collaboratively by the Office for Professional Development and Educational Scholarship (Queen’s University), the CHEER Patient and Family Advisory Committee, and the CHEER Educational working group. With special thanks to everyone who contributed to the content of the modules for their hard work and dedication to the CHEER project. Without their commitment and invaluable expertise, the creation of these modules would not have been possible.
Subject Matter Experts:
Alice Virani, Georg Schmolzer, Lorne Gould, Melissa Parker, Michael Rieder, Dakota-Marie Oliver, Laura Arbour, Sam Noyek and Natasha Pardy
Reviewers:
Richard Carpentier, Thierry Lacaze, Valerie Bourada, Dakota-Marie Oliver, Nancy Young, Cindy Peltier, and Lorrilee McGregor
CHEER Education Working Group:
Miranda Miller, Megan Allore, Will Horton , Lynsee Stephens , Eleftherios Soleas , Jeanne Mulder, Michelle Krezonoski, Shelby Gilmore, Joeline Lim, Jessica de Haan, Sonali Sheth, Brian Hallam, Cheryl Hallam, Natalie Graham, Blessing Hammond, and Stephen Sparks
Principal Investigators:
Susan Marlin, Richard Carpentier, and Thierry Lacaze
Module 4: Research Data
In this module, you will explore the different types of research data and how it can be collected, used, stored, and accessed in child health research in an ethical and equitable way.
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These competency-based online modules were created collaboratively by the Office for Professional Development and Educational Scholarship (Queen’s University), the CHEER Patient and Family Advisory Committee, and the CHEER Educational working group. With special thanks to everyone who contributed to the content of the modules for their hard work and dedication to the CHEER project. Without their commitment and invaluable expertise, the creation of these modules would not have been possible.
Subject Matter Experts:
Nancy Butcher, Daria Ilkina, Holly Longstaff, Matthias Görges, Michelle Dittrick, Kimberlyn McGrail, Brittney Schichter, Kevin Thorpe
Reviewers:
Kent Cadogan Loftsgard, Karen Haas, Nancy Paoli, Laura Zitron, David Bell, Donna Ludwinsk
CHEER Education Working Group:
Miranda Miller, Megan Allore, Lynsee Stephens, Eleftherios Soleas, Shelby Gilmore, Hannah Priddle, Kelly Huangfu, Katherine Heikkila, Sonali Sheth, Natalie Graham, Blessing Hammond, Stephen Sparks, Samuel Rajaratnam, and Hargun Sidhu
Principal Investigators:
Susan Marlin, Richard Carpentier, and Thierry Lacaze
Module 5: Study Design
In this module, you will learn about different types of study designs that are commonly used in child health research and the numerous scientific, practical, and ethical factors considered in designing child health studies.
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These competency-based online modules were created collaboratively by the Office for Professional Development and Educational Scholarship (Queen’s University), the CHEER Patient and Family Advisory Committee, and the CHEER Educational working group. With special thanks to everyone who contributed to the content of the modules for their hard work and dedication to the CHEER project. Without their commitment and invaluable expertise, the creation of these modules would not have been possible.
Subject Matter Experts:
Nancy Butcher, Martin Offringa, Jill Hatchette, Srinivas Murthy, Daniel Morgenstern and Amy Metcalfe.
Reviewers:
Kent Cadogan Loftsgard, Karen Haas, Nancy Paoli, Laura Zitron, David Bell, Donna Ludwinsk, and Antonia Palmer.
CHEER Education Working Group:
Miranda Miller, Megan Allore, Lynsee Stephens, Eleftherios Soleas, Shelby Gilmore, Reginald Hodge, Hannah Priddle, Kelly Huangfu, Katherine Heikkila, Sonali Sheth, Natalie Graham, Stephen Sparks, and Samuel Rajaratnam.
Principal Investigators:
Susan Marlin, Richard Carpentier, and Thierry Lacaze
This project was made possible thanks to funding from the CIHR Institute of Human Development, Child and Youth Health and the CIHR Institute of Genetics.
MICYRN offers consultation with the MICYRN leadership team to discuss pre- and post-award ARO services. Click on the button to learn more and access the form.