Working Groups

Data Management Core

The objective of MICYRN’s Data Management Core is to support multi-centre collaboration in maternal-child health research by developing a sound data management strategy. Paper has been the traditional means by which information is collected, but suffers from many limitations when compared with electronic web-based solutions. However issues of health information privacy, data security, and regulations regarding electronic documents may make these electronic solutions complex and often expensive to implement. A national data management strategy focused on the needs of maternal and child health research is being developed to help overcome these barriers. An integrated and coordinated data management strategy will enable clinical research with faster study start-up, reduced overall costs, improved data quality, and will leverage knowledge and experience from multiple sites.

MICYRN has adopted principles of (1) use and enhancement of existing data management initiatives and expertise; (2) use and enhancement of existing open source EDC, CDMS/CTMS solutions with non-restrictive licensing policies to ensure broad dissemination and benefit to MICYRN and Canadian clinical research; and (3) use of existing, proven infrastructure and data management practices.

MICYRN’s Data Management Core is based in Edmonton at the Women and Children’s Health Research Institute.  Several data management systems are offered – you can arrange to see web-based demonstrations and discuss features to suit your needs. 

Whether you want advice on acquiring software and hardware for your own purposes, or you want data management and hosting services, contact:

Dr. Lawrence Richter (DM Core Chair)  Lawrence.Richer@albertahealthservices.ca  or,

Rick Watts B.Sc., FICR, CSci, Team Lead, Clinical Research Informatics (780) 248-1170 or rick.watts@ualberta.ca